Thursday, March 21, 2013

Open Book

One thing that bugs me about blogs is when life is perfect for the blogger.

Life is never perfect. As a reader, I want the joys and the heartache.

Today, I'm here to tell you about both of mine these past couple weeks.

Big Boy said it was okay for me to write about this today. He doesn't feel any different, so not even sure of my question.

In February, as a result of BB's IEP preparation, we met with a Nueropyschologist to work with Sam for nearly six hours over two days. She tested, talked, questioned, and became confused and charmed by our boy.

Two weeks ago, we got a diagnosis of Asperger's Syndrome for our son.

This is not shocking to me, as I often questioned the ADHD diagnosis that was made by a doctor that believed everything that came from BB's mouth was honest. I still cringe at the mention of his name.

The joy I share with you today is immense. We have so much more support with an Autism diagnosis than we did with an ADHD diagnosis. I am joyful that when BB behaves undesirably, I am a bit more patient and understanding. I am very grateful for my patience. It's come in handy the weeks following the diagnosis, so many left messages and emails, so much waiting.

And this of course holds a bit of heartbreak as well. I wanted the best for my boy. I didn't want him to have to struggle. I wanted him to always fit in and be the "cool" kid. I wanted him to be willing to try anything.

Don't get me wrong, I know he can do many things. With the additional services he is now receiving, he will show me that all my dreams for him will not only come true, but I will be astounded with what he will accomplish.


Robert White said...

"Don't mourn the dreams you had for your son, Embrace the dreams he has for himself."

I have talked with many parents of loss, of developmental diagnoses, of physical handicapped, and that statement seems to be a common theme among them.

Your son will always be special to you no matter how different, no matter how old, no matter what diagnosis. He is a precious life not unlike any other child. Plus he looks really cool to me.

All my best and support to you and your family. Keep the blogs coming.


Elizabeth Fingeret said...

Carrie- any diagnosis involving autism is hard to hear. However it gives you access to many wonderful services. This was something I always emphasized to the families that I worked with. Now you have an accurate diagnosis and can get him the help he deserves. Best wishes to you and your family as you navigate through this.

Carrie Guzzino said...

I love this. Thanks for taking the time to remind me that they are his dreams, not mine.

Thanks for the comment.

Carrie Guzzino said...

Thanks, Elizabeth.

I am astounded by all the services available for him. We are making paths!

Anonymous said...

The mother's heart is the child's schoolroom.